The French sentinel network on epilepsy-related mortality


To better understand the causes and circumstances of deaths related to epilepsy and lead to better prevention, the French League Against Epilepsy (Ligue Française Contre l'Epilepsie (LFCE)) with the support of the French Epilepsy Research Foundation (Fondation Française pour la Recherche sur l'Epilepsie (FFRE) ) founded the French sentinel network on epilepsy-related mortality named Réseau sentinelle Mortalité Epilepsie (RSME).

Objectives

  • To describe causes and circumstances of death related to epilepsy in France,
  • To support bereaved families in particular by helping them to get in touch with other bereaved families

More specific objectives

>>  To answer questions of bereaved families :

                     - By offering them to have a talk with a neurologist of the network
                     - By providing information and documents on the website or by mail at the request of families
 
 

>>  To inform physicians and provide them some answers when faced with their patients' death :

                       - Establishment of a national network of psychologist
                       - Establishment of a national network of bereaved families
                       - Providing specific training for physicians and specific documentation


>>  To estimate the incidence of mortality from epilepsy in regions actively participating in the network


 
>>  To establish a national database to set up research projects


Who can and how to report a death?

The French sentinel network on epilepsy-related mortality

The French sentinel network on epilepsy-related mortality

The French sentinel network on epilepsy-related mortality

The French sentinel network on epilepsy-related mortality



Rédigé par Réseau RSME le Vendredi 28 Octobre 2011 à | Lu 307 fois modifié le Vendredi 23 Mars 2012
Association Ligue Française Contre l’Epilepsie - Centre Médical de la Teppe Tain l’Hermitage 26600 Tain l’Hermitage

N° SIRET: 39127000600011 N° Intracommunautaire: FR32391270006 CNIL N°
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